Ear-worms, Errands, & Early Winter

This is what I woke up humming this morning. I must say I could play this score all day and not tire of it.  The brilliant Michael Ball & Il Divo - what’s not to love?  Yes, in case you didn’t already know, I am an incurable romantic.  So shoot me!

Jeffrey picked me up early and we set out in the (suddenly) frigid cold weather.  What happened?  Yesterday it was in the 50s and today we’re shivering in the 28’ F range with 20 mph winds!  And…I cannot wear long trousers because of the leg rash. All my summer shorts are in the laundry Jeffrey was taking home to wash for me and the only sweats I have are way too big for me nowadays. Three of me could fit in them. Not a great look, if you get my drift.

So guess who wore a kilt again today? The more I wear them, the more I love them. I wore the Scottish Wool one - and yes, with underwear - along with a tee-shirt under a long sleeve sport shirt and covered all with a hoodie. When he picked me up, Jeffrey thought I was nuts since he was bundled like an Eskimo or a frozen Elf.  Take your pick.

With lists in hand, we were off!

I had sets of house keys made for Jeffrey and Nicole, so they can get in if I’m not up to opening the door, for any reason. I also shopped for a small electric space heater for the bathroom. There is no vent in there for the central heat and the thermostat died in the old heater that's 10 years old. Bought that, too.

With winter making its early debut, Jeffrey wanted to look for flannel sport shirts.  We stopped at Eddie Bauer, Bass, and Dickies.  Finally found one he liked, a handsome plaid and well made; I probably should have followed his lead, but thought I’ll hold off a bit and see how the money goes. 

Hit the pharmacy for a refilled script that has done wonders for an annoying dry cough I’ve had since the hospital. The cough is almost gone completely. Grocery shopping was next then we headed for a few hot coffees and breakfast.

Happily, the wool kilt kept my torso and lower body warm. Because of the strong winds the only thing to get cold (now stop with the evil minds!) was my nose. The old Twig & Berries were fine, thank you. The hoodie kept my head and ears toasty and the feet weren't bothered at all.

Walked in the door around noon to a strange “chirp” sound that Jeffrey recognized immediately.  I was clueless until we walked into the bedroom.  The chirp was emanating from the smoke alarm, (which I thought was electrical since I had never changed a battery in the years I’ve been here) so Jeffrey asked for a 9V battery and hunted down the battery location inside the device.  Thank the Goddess he was here because I  could not have climbed a ladder to search for the hidden pocket. 

It took him a few minutes of huffing and cursing, following wires, setting off the test alert a few times, to zero in on the exact location. Let’s just say the battery compartment is well hidden. The battery power is only used if the electrical power goes off and it functions silently. How would I have known of the battery’s existence?  I wouldn’t. But FIVE years? That's some long-lasting battery.

He grabbed the laundry bag, the last of the house plants, and the new set of keys.  Then he gave me a hug and headed for home.

After putting everything away, I got into bed and took a short nap. Woke up a while ago with leg and back pain, had a quick sandwich for supper and took a pain med. I am tired, so I think I’ll snuggle into bed and read a few hours until I fall asleep.

Another day of adventure and misadventures; and tomorrow begins with Labs at the Center. Not sure I can stand being out of the house two days in a row.

I am amazed.

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ABBA, Answers, & Baba Ganoush

Greeted the day with little pain and no dizziness. Drank 2 large glasses of orange juice while brewing a coffee. Feeling pretty good today.

The song swirling around in my brain when I awoke this morning was “Take A Chance On Me” once a not-so-big hit by ABBA. Fortunately, the song was included on the one CD I have of the group, so as soon as the sun  came up and I was sure not to disturb anyone, I played the thing just to get it out of my head.

Called the Center today with important questions for the doctors. The nurses in Triage helped me out a lot explaining some of the reactions I am experiencing and can expect for a while, as the body works up to its “new normal”. Then I talked with the doctors.  I took a lot of notes. I had to. As I re-read them they sounded more complicated than they actually are. Common sense stuff, really.  

So now I kind of know what to expect. The reason most of this information wasn’t given upon release is that people react differently in similar circumstances and it is easier to focus on an individual after the fact when they experience specific symptoms. At least that’s what they told me. In other words if it didn’t happen to you it’s not relevant to your situation. So there!

The bottom line is:

Recovery will take a long time.

Expect mild to severe pain at any time.

Take medications on schedule daily.

Get plenty of rest.

Be aware of minor physical & mental changes.

Be aware of internal bleeding.

Watch for external bruising, skin discoloration, and rashes.

Pushing the body to heal quicker can cause a relapse.

Sleep whenever possible.

Do not drive a vehicle until you know you can.

Drink plenty of water.

Eat when hungry. Force-feeding is not good for the body.

Eat what gives most pleasure, on Neutropenic diet.

Eat plenty of cooked fruit and vegetables.

Now, that’s a lot to be conscious of on a daily basis.

The truth be told, if it wasn’t for those three taking care of me from day one out of hospital, I wouldn’t be here now. It really is that simple. And to think that Linda already had an over all plan of care before I even got home is mind-blowing. She’s a very insightful woman.

On a funny note, I contacted the Funeral Home to set up an appointment to discuss my “wants and wishes” regarding a funeral. The person answering the phone couldn’t be bothered and told me to complete the survey/questionnaire at their website. I suppose those close to death or their family members don’t need personal, customer service when a few questions answered online can whip out the perfect service for their needs. Maybe I’ll answer the questions at a later date, right now I can’t stop shaking my head and laughing. 

To brighten my day I just received an email from my Visa Card company offering to turn my miles into gift cards.  Ten thousand points equals a $100 gift card. I think I will choose an Amazon card and spend it on myself since I’ve bought a lot of ebooks lately and there are a few other items I would like to order, not the least of which is proper kilt hose, or socks. With the temperatures dropping and the inability to wear long trousers (due to the leg rash), I think I’ll need a little help keeping warm this winter. Though my legs seldom get cold, my body has changed and ain’t what it used to me. 

I’ll keep - and add to - those points in the off chance that I can use the air miles for an upcoming holiday somewhere away from here.  Hey!  One can dream, can one?

Going to ask Jeffrey to take me grocery shopping tomorrow. I’ve suddenly got a craving for Baba Ganoush. I need a healthy snack to munch on while on the computer or reading. Now if I can find enough energy to prepare it, all will be well. I will use store-bought Tahini, no energy to make my own.

ABBA has been playing in an endless loop in the background all day.  Aaarrrrrggggghhhhh !!!

I am amazed.

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Movie Memories and Music

OK, this is going to be one of those “Brain Fog” posts, so do try to keep up, or at least hang on as long as you feel it’s worth it.

Death has taken away some very special people recently, including Sir Richard Attenborough. Now you may have thought I'd be thinking more of Joan Rivers, but no, my friends. It’s Sir Richard for me this time round.

A brilliant character actor, dramatic actor, great clown, and one of the finest directors the film world has ever seen.  I was reading an Obit penned by his naturalist brother, Sir David, who is a genius in his own right, and putting the 2 together made me think of (hang on here) the original Dr. Dolittle film which starred Rex Harrison as Doctor D., Samantha Eggar, Anthony Newley, and Sir

Richard who played a jovial chap with an extraordinary animal in his company.  The famous “Push-me-Pull-you” as seen above (you had to be there).

Anyway, Attenborough provided a brief and sparkling presence and as I remember, larger than life, even for such a far fetched concept.  You believed.

Apropos of nothing.  Leslie Bricusse (Anthony Newley’s writing partner of many years) wrote a very touching song for the film that suddenly gave me an ear-worm. It's a love song.  Here is a cover of that song by Linda Eder: 

Beautiful, no?  No ifs, ands, or buts, about it. Well, now here’s the song from the soundtrack of the film sung by the Doctor, Rex Harrison.  Guess who he’s singing to and for whom the song was originally written?  You’ll hear it at the very end of the song; the last phrase.

Beautiful, just beautiful. Dear Sophie. 

Isn’t it strange how our chemo-saturated, addled brains toss thoughts about like small boats in a swift moving stream? Just another trip through the Pointless Forest, sans Oblio & Arrow. How my choo-choo-train of thought brought me to this place is beyond me, but I’ve enjoyed the trip.  I hope you did, too.

And so it goes.

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New Life for the Orpheum Theatre

I was seven years old when I paid my first admission to the Orpheum Theatre. The beauty of the space took my breath away. I was fascinated by the luxurious velvets and silks; the ornate gold leaf trim around the proscenium and up to the ceiling surrounding the huge chandeliers.  It was a most impressive sight, for sure. (Click on any image to embiggen.)

I was there to see the re-issued Disney animated film, Fantasia (first released in 1940). I was with my sisters and a few neighborhood kids, as I recall.  Most

everyone in our little group became physically ill, some having to throw up, because of the animation.  Not me! I sat in that huge space and drank every bit of the film in. The theatre had a state-of-the-art sound system, too, and the film was presented in the original stereo format.  I was blown away - by the film and the theatre.

Four years later I was actually on the stage performing in a live radio broadcast of a locally produced show. (Television was coming soon.) It was during this visit for rehearsals and then broadcast, that I learned some of the history of the old place. It had been known as the RKO Orpheum from it’s early days as a vaudeville theatre, and the backstage areas still held the trappings of those years.  Dressing rooms with light bulb sockets surrounding the mirrors where makeup was applied.  Special passages and stage works were everywhere.  

With the best acoustics of any venue in the city, it became the home of the

Louisiana Philharmonic Orchestra.  It was a first-run movie palace for years before the  disarray, disintegration of the downtown area. In later years, it hosted theatrical events and concerts before Katrina shut it down for the past decade.

But, the grande dame is getting a facelift, thanks to new owners with a vision, cash and imagination to see it happen. From NOLA.com:

The Orpheum Theater has played host to silence for nearly a decade. The 96-year-old space, shuttered since Hurricane Katrina, is the preferred venue of the Louisiana Philharmonic Orchestra because of its pristine acoustics. Going back further in history, it was a stage for vaudeville, then a movie house.
The last time Roland von Kurnatowski remembers attending an event there was the 1960s. He was a kid going to see "PT 109," the biopic

High water mark from Katrina on exit doors.

about John F. Kennedy's World War II service in the South Pacific.
Fifty years later, a rolled-up movie screen still hangs above the stage, and von Kurnatowski is a new owner of the Orpheum, overseeing a $13 million year-long renovation of the theater.
Even in its state of disrepair, the majesty of the Orpheum persists.
"I can imagine what performing on that stage would feel like with your audience so close," von Kurnatowski said. "Something about it -- it really grabs your attention. It's a confirmation that this is a special

place, very deserving and worthy of the effort."
He and his wife, Mary von Kurnatowski, are perhaps best known as the owners of Tipitina's club and founders of Tipitina's Foundation, which supports music culture by supplying instruments and internships to young musicians. They bought the Orpheum for $1.5 million in February with business partner Dr. Eric George.
It was listed for sale last year for the third time since Katrina, after

years of failed promises from other developers to rejuvenate the performance hall.
Roland von Kurnatowski drove past the Orpheum a couple of days before Thanksgiving last year and saw the for-sale sign. He recognized the name of a friend, real estate broker Don Randon, and picked up the phone. Three days later, he had written an offer.
"I knew right away it was going to be all about bringing it back to what it was," said Mary von Kurnatowski.
The new owners hope to restore the history while creating a space for multiple uses, from the return of the Louisiana Philharmonic Orchestra and other musical performances to movie premieres, private events and fundraisers.

The rest is HERE.

I had a similar experience when I was given a tour of the then-closed Beacon Theatre in NYC. That too, is a memory that will live with me forever. 

There are two things I dreamed of owning all my life; one was a theatre where I could show the films I wanted and stage the shows no one else would; and the second would be a radio station.

Having studied film at NYU, worked in theatre and radio since I was 10, I think I could have done some good and brought obscure movies the attention that I think they deserve. A radio station without a format would be a real dream come true for many people I know.  Every 3 or 4 hour segment would be devoted to a different genre jockeyed by an expert in that specific genre.  Where there was spill-over of genres, there could be open mike and call-ins. We had a similar (though much pared down) version of this at the last station I worked in NJ.  Ah, the roads I didn’t take….

Suddenly I have an ear worm. Let Sondheim take us from this nostalgic place.

One has regrets Which one forgets And as the years go on The road you didn’t take Hardly comes to mind Does it? 

The door you didn’t try Where could it have led? The choice you didn’t make Never was defined Was it?

No.  It wasn’t. Still, it does my heart good to see the old Orpheum brought back to life with a grand future ahead. Maybe I’ll get to see her once more in all her rejuvenated grandeur.  May it be so.

And so it goes.

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Thin Mints & Wiggly Veins

Instead of "capped teeth & caesar salad" - never mind, it's a Lloyd Webber Thing. Woke up with this song in my head. Damn these morning ear worms!!! Anyway, it's the first obvious title that came to mind. Deal with it. And humor me, OK?  

Arrived at the Center yesterday morning at 7:15 am, and the place was already jumping. Lots of people arriving for Chemo treatments, some in better moods than others, especially for such an early hour. 

When one of the nurses from the Infusion Dept. came to escort me back to my section for transfusion, she surprised me with a bear hug and a box of Thin Mint Girl Scout Cookies.  The story goes that she found a few little girls standing at a small table in front of some store, in the freezing cold, and she thought of me.  So she bought a box as a gift. What a thoughtful surprise. I tried to pay her but she wouldn't accept my nasty cash. 

There was a large strip of surgical tape wrapped around the sealed box with my name printed on it in big black magic marker letters. She made sure that no one was going to eat those cookies. Every nurse in the section came up to tell me how lucky I was to find the box still intact. Seems they all love chocolate and Thin Mints, too. 

I offered to open the box and share, but they would have none of that.  Those cookies were special - they were mine. Indeed, I did feel special.

Getting down to the blood business at hand, two nurses began to prep me by attempting to open a port in one of my arms.  I have two arms, BTW. That's when the problems began. I have been told I have "great" veins; easy to see and so convenient to access for transfusing. However, with the continued weight loss, it seems the veins have a tendency to wriggle around, making it difficult to open a port. 

After 6 punctures and 3 blown veins, one was finally found to be stable and the access point was opened. By this time I had 6 holes in my arms, covered in gauze and medical tape. The spots where the 3 veins had blown were swelling, and purple - though not painful. These would have to be watched carefully for any leaking as the blood entered my body.  The pressure caused by the incoming blood flowing rarely results in this effect, (but it happens)  which is not pretty, and fairly uncomfortable. 

This stress coupled to the effect of the Benadryl injection meant there would be no reading while I sat there for 6+ hours. So I whipped out the earbuds and listened to music, instead. This turned out to be a mixed blessing. I was able to nod off at times, but still had to be aware of any change in the taped up wounds.  

One outlet began to leak, so the flow was reduced to limit  the pressure, which seemed to help. All in all, the dressings had to be changed twice throughout the day. A day made half again as long as it should because of the slower rate of blood transferred each hour. I was held captive for nine hours rather than the usual six.  Yep, another full day shot to hell.

Of course, as a human pin cushion side-show freak now, I am not allowed to bathe or shower for 48 hours. To shave, I need to wear long sleeves and medical gloves to protect the hands and arms from getting wet and possibly infected. 

Are we having fun, yet? 

Between the vertigo, the effects of the Benadryl, and the Lasix making me pee my brains out every few minutes, I somehow managed to drive home, hobble up the stairs, and belly-flop onto the bed. 

That's where I woke an hour later, feeling suddenly hungry and the urgent need to pee, yet again. Being in no condition to stand and cook a meal, I opted for sour dough toast washed down with cantaloupe before heading back to bed. 

Woke up at 3 am today feeling weak but rested. Though spring-like weather is on the agenda today, I have no plans to leave the apartment.

I've made more lists as I enjoyed breakfast and coffee.  Two coffees, actually. My mind is full of ideas, but I don't have the requisite energy, or even enthusiasm to follow through on any of them.

Weekly blood work yields little positive change.  The CBC remains  low, though the Neutrophil count is back up in normal ranges, probably due to the steroid I've been on for 3 weeks now. But that seems the only step forward - the relief from having to wear the damned medical mask in public all the time. 

I have to let people know that this is what is happening, that it isn't just because I'm lazy or lethargic.  Heaven knows, I've had enough peaceful, down time in the past few weeks and it's not for my emotional well-being. 

Finally talked with the sister.  She's prepping for open heart surgery. She's scheduled in two weeks and was given a tour of the ICU where she will spend her recovery time. I could tell she was apprehensive, but she asked the medical team all the important questions and feels resigned to what's to come. The call cheered us both up and after a half hour we were in our usual laughing mode and feeling better for the conversation and support. Of course, she wants to help me as I want to be there for her.  Ain't gonna happen. 

Of course, I didn't mention that when the vertigo is really bad, I'm light-headed from the inability to gather full lungs of air, my eyes won't focus to read, and I cannot concentrate on a youtube video, I feel as if I'm just hanging around waiting to die. 

On that cheery note I will just say, it is what it is.

And so it goes.

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Earworm: Scotch & Soda

For some reason this old favorite has been in my mind and on my lips all week. Don't know why. May be the full moon.

I knew things were out of hand when I woke from a dream this morning. In this dream, I was singing this song, accompanied by the original artists - The Kingston Trio - in an old long-gone Folk Coffee House in the Village in NYC.

It was then that I knew I had to act; find the damned song and post it just to get a little peace. Not surprisingly, the song and the singer's raspy vocal hold up well after 50 years.

I've played various versions all day, and this one is my favorite and closest to the original as I remember it.

And so it goes.

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