(cue: Happy Days are Here, Again.)
There’s little good news this week from a medical standpoint. CBC numbers in the basement (again) with another full day of tests yesterday and a repeat of more, but different tests today. Including another Ultrasound.
Numbers so low that my tired old body requires not one, not two, but THREE Neupogen injections to kick start the bone marrow into producing more cells. Endured one yesterday after the Lab results, will receive another today while receiving 2 units of new blood, and one tomorrow morning for good measure. Yes, the outlook is pretty grim.
A new prescription was ordered that will eliminate the high levels of iron in my system. Seems receiving so much whole blood over these past 8 months has caused iron to become dangerous to my overall health. OK, stop laughing, ‘cause that’s what I did when they explained the reason.
With this new med I can look forward to the joys of massive G.I. discomfort as the drug sucks the iron from my precious bodily fluids. Oh stop. You’re just jealous, I know.
The Oncologist dragged out the dead horse of a possible marrow transplant again, obviously having no idea where to go next in my treatment and hoping for some miraculous change in my matching status. He even wants my old biopsy results reevaluated in case he missed something the first 3 times around. Yep, it’s come to this.
As I left him yesterday, he was on the phone with Johns Hopkins discussing my case with the same “specialist” who initially rejected my case in November, 2013. Like that’s going to change anything? Um, no!
While all this is going on backstage, I will continue the Vidaza Chemo treatments for the coming 3 months and hope for the best. The next 2-injections a day for 7 days of treatment begins on July 7, and you know how much I look forward to that date, I’m sure.
The problem with the Neupogen is that it make one’s bones actually hurt. Almost like you have the flu. We all know those aches and pains, don’t we? Yes, but this pain is of a stand-alone type with no other underlying symptoms which makes it a very bizarre experience, indeed.
So, here I am wide awake at 2:30 a.m. getting organized for a long day between hospital and cancer center; being poked, prodded, and riffling a lot of paperwork around to be sure it’s legal and (most importantly) covered by insurance.
I don’t feel terrible, just very stressed, depressed; tired of being tired, out of circulation, and alone most of the time.
And so it goes.